Sometimes it takes a tragedy
to make us see the true meaning of our journey here on earth. This week my daughter’s friends buried their
precious 21-month-old daughter. I realize
we never know what is going to happen to us on this journey through life. But I do know we can’t do it without
faith. Faith is the glue that holds us
together through the joys and sorrows in our life. I started thinking about all my friends and
family members. Every one of them has a
story to tell about this journey through life.
How many people keep their struggles and their pain to themselves – not
wanting to burden others? I know I have
done that many times in my life. I do
tend to share my joyful moments but keep the painful ones inside not wanting to
burden others. Maybe we all need to
share these sorrows too!
Life is so short and we need
to celebrate the beauty that is around us.
We need to say “I love you” more.
We need to give hugs and kisses more.
We need to truly listen to those around us more. We need to laugh more. We need to sing and dance more. We need to play more. We need to be more “childlike”. We need to cherish our family and
friends. And we need to thank God each
and every day for all the blessings He has given us.
In supporting our blog, you are aware
that we are doing everything in our power to find a kidney for Ken. But
our mission goes beyond this. We are advocates for all families out there
seeking kidney transplants. S. 1454 /H. R. 2969 is arguably one of the most
significant pieces of legislation for kidney transplant patients since the ESRD
coverage decision in 1972. This legislation would extend Medicare
coverage of immunosuppressive drugs for transplant recipients who are under age
65 and who under current law lose their Medicare 36 months after receiving
their transplant. Families like mine are depending on this legislation to
pass in order to make sure they are able to afford and receive the life-saving
medications needed after a kidney transplant.
MY CALL TO ACTION FOR YOU IS TO CLICK ON THE E-ADVOCACY SYSTEM LINK BELOW. You will be taken to a page where you can take action. You simply need to fill out a few fields with your contact information and submit. It will only take a few minutes of your time. The advocacy message has already been written and will be delivered to your congressional delegation based on your location.
MY CALL TO ACTION FOR YOU IS TO CLICK ON THE E-ADVOCACY SYSTEM LINK BELOW. You will be taken to a page where you can take action. You simply need to fill out a few fields with your contact information and submit. It will only take a few minutes of your time. The advocacy message has already been written and will be delivered to your congressional delegation based on your location.
One
of NKF's top legislative priorities is S. 1454 / H.R. 2969, to help kidney
transplant recipients obtain the life-saving immunosuppressive medications that
are necessary to maintain the viability of their new kidney. This
legislation would extend Medicare coverage of immunosuppressive drugs for
transplant recipients who are under age 65 and who under current law lose their
Medicare 36 months after receiving their transplant. H.R. 2969 has nearly
100 cosponsors and S. 1454 has 15 cosponsors! If you have not previously
done so, please contact your congressional delegation using our e-advocacy system to request their support
(or to thank them if they are already a cosponsor). Thank you!
Until next time may the Lord carry us on our journey for a kidney for Ken,
Pat
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